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Re: Adult Onset Bedwetting

Thu Sep 06, 2012 12:22 am

lynnk2104 wrote:Once a bedwetter, always a bedwetter? I think bedwetting, if lucky, goes dormant for years but ends up coming back. My high school friend who was able to fight it off, had it come back on him too. Luckily he was no stranger to protection but to doesn't lessen the blow.



Hmm... Looks like you may be right: http://www.ferring.com/en/newsroom/pressreleases/2011/Bedwetting_02Sep11.htm
That's depressing, :( .

I also stumbled across this: http://www.nobedwetting.com/adults.htm
Anyone know anything about this place?

Re: Adult Onset Bedwetting

Mon Sep 24, 2012 4:29 pm

Update:

Since last I posted, I've seen two urologists. So far the the results aren't particularly promising.

The 1st doc did a bladder ultrasound, which was unremarkable and showed no problems with urine retention. He spent a lot of time talking personal history with me, but in the end admitted he had very little experience with adult enuresis and referred me to another member of his practice.

The 2nd doc was surprisingly up to speed on my file when he walked in, and spent even more time walking through my childhood and current bed wetting issues. I actually found him easy to talk to and very thorough.

His recommendations and prognosis, though, were a bit discouraging. He doesn't feel the need to run any add'l tests. He's confident, based on what he already has, that this is not a physical problem of the urinary tract. He believes the most likely culprit is a change in my sleeping habits. He suggested a sleep study, but admitted that, with no other indications of sleep apnea, he doesn't see us getting much from it. His opinion is that this is most likely stress/emotionally triggered and will be self correcting. In the meantime, he's prescribed DDAVP.

I've been taking the DDAVP for about a week now. So far the results are mixed. Frequency is down, but not gone, and I'm waking up with a headache and a groggy/foggy feeling.

On the protection front, things have improved. The recommendations here helped tremendously, and I discovered a Canadian company called AC Medical that sells actual "rubber," i.e. latex, pants. They work much better than the pair of plastic pants I found previously. Between the Abenas and the rubber pants, my bed hasn't suffered the effects of my predicament in a few weeks.

I'm not sure what's left to do on the medical front. I guess I'm down to a wait and see game.

Re: Adult Onset Bedwetting

Mon Sep 24, 2012 9:56 pm

I wish they had the magical answer or known problem. It sucks that the bedwetting is rearing it's ugly head at this point in your life. The bad thing with DDAVP, the day you stop taking it things get real bad real quick. With the second life bout with bedwetting, things just don't look promising. I am glad you don't have any infections, but the flip side is it could be cleared up and the problems would go away. At least your wetting has not spread to daytime issues and a need for 24/7 diapering!. I sure hope it gets better and soon for you.

Re: Adult Onset Bedwetting

Thu Oct 11, 2012 2:16 pm

I fought bed wetting for at least 10 to 12 yrs it seems that the main culpurt is a combination of prostate and diabetic.It appears that no cure for it the best I can do is make sure that my wife and bed stay dry but it still is a letdown at my age.

Re: Adult Onset Bedwetting

Fri Oct 12, 2012 8:35 am

By way of an update: I've been on the DDAVP for a few weeks now. While it definitely seems to "help," its also definitely not my magic bullet. Instead of every night, I have a problem every 3-5 nights on DDAVP. Yes, that's great. It's a helluva improvement. But... It means I still can't go to bed without protection because I have no idea when/if I'll have a problem.

I also still wake up most mornings with a headache that I can only attribute to the drug. Since it's not eliminating the need for me to wear a diaper to bed, and I don't like the side effects, I'm probably gonna stop taking it when this bottle runs out in another week or so...

I've become a lot more comfortable with the idea that this may be here to stay. I've had a chat with a couple of close buddies, and my wife has done the same with a few of hers. All agree: What's the big deal? That part's encouraging, but "acceptance" wasn't really the path I wanted to walk... C'est la vie.

Re: Adult Onset Bedwetting

Fri Oct 12, 2012 10:20 pm

Thanks for the update Tim, I have not heard of too many success stories in regards to the meds, some with improvment, but most all with side effects... :x I have to deal with enough headaches, that I am far from willing to try any meds, they all seem to have side effects I can do without, sleep can be difficult enough, most of us do not need any help feeling groggy in the morning! Good to hear you have some supportive friends out there too... always encouraging, and the way I look at it, things could be much worse, and there are MANY others in much worse situations medically then I am, so I am thankful for what I don't have to deal with and try my best to deal with what I have on my plate... :) Some days aree definetly easier then others! Puffy

Re: Adult Onset Bedwetting

Tue Oct 30, 2012 11:57 pm

Well, I've pretty much given up on the quick fix concept and moved on to acceptance. After more than a month, I still get a headache from DDAVP almost every time I take it, and it was never more than 50% effective. I stopped taking it a little over a week ago.

So now, I guess, it's time to start figuring out more/better management techniques. The Abena/rubber pants combo is working pretty well for home, but isn't as discrete as I'd like for travel with friends. I ordered a package of the Abena pull-ons and tranquility boosters. I'm hoping that'll eliminate crinkling, taping, etc., and make getting dressed for bed faster when I'm sharing space with friends/family someplace. I know I'll still need the rubber pants, but they're fast/easy.

I'm also going to start looking into cloth for home use to try and cut the cost of disposables.

I'd appreciate any advice on options for good pull-on style diapers as well as good cloth diapers.

Re: Adult Onset Bedwetting

Wed Oct 31, 2012 6:58 am

CallMeTim,
It sure is discouraging...what you've gone thru with the return of bedwetting. And it's never easy to get to the acceptance part, where diapers appear to be the most practical management solution for keeping the bed dry.

You are wise to look into cloth diapers as a more economical way to deal with bedwetting, and you may even find cloth is less prone to leakage onto the sheets, especially if you are a side sleeper.

I will recommend pull on diapers from Babykins / KINS as well as Adult Cloth Diaper and even Loving Comfort but I have to add a caution with Loving Comfort!

They have been hard to contact and many thought they were out of business. They have a superior pull on diaper, in that it has layers of cotton from side seam to side seam where most of the competitors offered pull ons that only had a soaker strip down the center of the pants and little material in the sides. And, you get a choice of one to three layers. If you visit their site and go to adult products, the prefold diapers and contours will appear first and as you scroll down you will come to "pull on briefs" but keep scrolling down to the next one, "pull on diapers". The "briefs" are like what everyone offers in a pull on; a central soaker. The "diaper" is layered all over...from side seam to side seam....you get the same thickness in the sides as you do in the crotch.

KINS and ACD are easy to deal with, have great websites and with some investigation you should be able to see if the pull on diapers are offered in the "full coverage" version rather than just the central soaker. I would say to avoid the polyester sponge centers as they are quite bulky and not that absorbent. Nothing beats cotton for absorbancy!

If you only need to wear diapers for bed time, the "keeping them up" issue probably won't occur. But if you do wear them while walking around, you will find as they get wet (and heavy) they will sag and start pulling down off your waist as there is only the elastic waist band to hold them up.

For wear while moving around I recommend the Velcro on diapers. Now you can get a snug secure wrap around the waist which does not depend on just elastic to keep the diaper up. Velcro on diapers are not generally thick enough for overnight as they are designed for discreet daytime wear, where they need to disappear under clothes. So if you go the Velcro route, plan to get cloth soakers or (most economical) cloth baby diapers and add layers to the inside of the Velcro on diaper.

Pre-fold diapers are available, certainly, in day weight and night time weight but I really do not recommend a new user getting involved with pinning on diapers....maybe, after you've worn cloth for some time and really want to try your hand at pinning diapers....but I say no to anyone starting out; stay away from that pinning hassle!

Good luck and do keep us informed as to how you are doing!

Re: Adult Onset Bedwetting

Thu Nov 28, 2013 9:01 pm

ron wrote:I fought bed wetting for at least 10 to 12 yrs it seems that the main culpurt is a combination of prostate and diabetic.It appears that no cure for it the best I can do is make sure that my wife and bed stay dry but it still is a letdown at my age.

It seems my bedwetting is caused by a similar combination. It was a shock to find my self wetting the bed again after being dry since my early 20's I have read that those who were late bedwetters like me are much more likely to sart again later in life. I've learned to cope with it now and just get on with my life. Having a very understanding wife does help.

Re: Adult Onset Bedwetting

Thu Nov 28, 2013 9:03 pm

lynnk2104 wrote:Once a bedwetter, always a bedwetter? I think bedwetting, if lucky, goes dormant for years but ends up coming back. My high school friend who was able to fight it off, had it come back on him too. Luckily he was no stranger to protection but to doesn't lessen the blow.

It certainly seems that way. I was a late bedwetter and had been dry from my early 20's. It came back with a vengence about 8 months ago and shows no sign of stopping.
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