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Support for dealing with incontinence
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 Post subject: Re: good news!!!!!
PostPosted: Thu May 26, 2016 9:59 am 
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Joined: Sun Jan 25, 2015 9:13 am
Posts: 397
Hi Justej

Don't worry about it, you have a lot happening at the same time New urologist, recovering from surgery and your medical supplier playing games. We all have gotten to the point once in a while that we feel like every thing is going against us.
Dealing with bladder issues no matter how you manage it gets us all really down once in a while and we need to vent but after a short time it gets easier again to deal with having to wear protection.

Hope you have a speedy recovery from your surgery snd you get good news from your suppler they will be able to get your approved diapers instock.

Rob


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 Post subject: Re: good news!!!!!
PostPosted: Thu May 26, 2016 12:33 pm 
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Joined: Wed Aug 19, 2015 11:49 am
Posts: 890
Location: Jacksonville Fl
justej wrote:
its hard to be strong when ive been through so much.
im 38 years old and was told yesterday that i cant walk until august and im at risk of never walking again.
im 38 years old and i have to wear f'in diapers.
ive had 3 surgeries in a year. im tired of this. im tired of my life.


You think that is bad, I went through the same situation when I was 18. I'll tell you the same thing I was told. Don't give up! Will, determination, and pushing yourself go a very long way in how much you will bounce back from this.

I'll also say you already know there are much worse things to go through than needing diapers. Don't let the small stuff get to you. Diapers are what help you get your life back, not end it.


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 Post subject: Re: good news!!!!!
PostPosted: Fri May 27, 2016 8:53 am 
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Joined: Mon Mar 05, 2012 11:15 am
Posts: 292
Location: Mississauga, Ontario
Brian, I'm very sorry to hear about your current situation. You've been through a lot, and I can well imagine you bummed out you must be. Hang in there. And feel free to rant to us if that helps.


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 Post subject: Re: good news!!!!!
PostPosted: Fri May 27, 2016 11:52 am 
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Joined: Wed Aug 19, 2015 11:49 am
Posts: 890
Location: Jacksonville Fl
Thanks, but believe it or not I am not bummed out over it any more. Of course, thanks to pushing my rehab and taking it serious I can still walk (can't run though).

This is what I'm trying to tell justej. I well know it sucks for him now for sure, but it really does get a lot better- if he wants it to.


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 Post subject: Re: good news!!!!!
PostPosted: Fri May 27, 2016 12:39 pm 
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Joined: Mon Jan 27, 2014 1:29 pm
Posts: 850
ej, I know it's difficult, but please stay strong and direct your energy toward utilizing the resources you have to the fullest. Like Porkchop and Brian, I worked hard at rehab and got back my ability to walk after I had a stroke (I also can't run, though). I would ask your case manager and doctor to put forth a coordinated effort to strong-arm the medical supplier into compliance. If Medicaid approved the brand, I would think they would buy from a supplier that carries it.

W.


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 Post subject: Re: good news!!!!!
PostPosted: Fri May 27, 2016 2:55 pm 
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Joined: Fri Feb 20, 2015 7:49 pm
Posts: 1440
Location: washington, dc
we tried every option.
no supplier in my area covers good quality diapers.
im going to have to wait for my disability to come in and spend $230 of money i dont have.
and until then sit on bed pads and hope for the best.
i literally hate everything about my life right now


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 Post subject: Re: good news!!!!!
PostPosted: Sat May 28, 2016 2:31 am 
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Joined: Fri Feb 20, 2015 7:49 pm
Posts: 1440
Location: washington, dc
my case manager found one more supplier that seems to be more helpful.
i wont get excited until a package arrives at my door though.
a friend ordred me a package of molicares off amazon and did next day shipping so they should be here tomorrow.
hes one of my only close friends who knows about my incontinence.

heres hoping for the best....


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