I feel for you.
I have various fusions C5-C6, L2-S1 and a narrowing between T11-T12, all trauma related. While I have not been formally diagnosed with CE, I do seem to have some of the symptoms: * post-void residual incontinence; * decreased anal tone; * saddle anesthesia; * bilateral and/or unilateral sciatic leg pain.
I feel as though I have been punched in my coccyx, the surrounding muscles feel tender. Pinching to shut off urinary flow or close the anus hurts.
I am mostly dry by day, seldom by night and although I have control I seem to leak constantly after voiding. My bladder neck has been reconstructed, and I do not have any prostrate problems, but my uretheral valve could have been damaged by inconsiderate implatation of a catheter while undergoing surgery (twice). Feacal accidents are seldom unless I have a runny tummy, I do need to urgently get to facilities.
I find the problem with infrequent wetting is that you never know when you will need protection so I always wear some, and if you are wearing it, your resolve to prevent an accident at all costs is diminished, so I often end up wet anyway.
I am not entirely sure whether I have CES, but there is enough smoke here to call it a fire.
|