www.incontinentsupport.org

Tuesday September 1, 2015 Good afternoon everybody, thank you to everybody who has stopped by and checked out my blog, kept up,with my situation, and offered their well wishes. Everybody's support means a lot to me. So I've had a couple of doctors appointments since the last time I wrote. I went to see two more urologists, these were number four and five urologists and doctors #12,13. I ran my theory of interstitial cystitis by them and I was quickly rebuffed because I do not have any pain. These are urologists in a good size teaching hospital and I had hoped that they were well versed enough in the condition that they could make a definitive diagnosis after a year and a half now.The more I think about it the more convinced I am that it is interstitial cystitis. I still don't have any pain but I still have pretty excessive urinary frequency, urgency, and some light incontinence. Not much has really changed with the condition it is pretty much status quo. The doctors did offer Botox and InterStim for treatments, so we don't know what it is but we can offer treatments, I don't get it..... I fairly quickly wrote off the Botox as if that goes wrong I'll end up with a foley anyway. So I figure I'll skip the surgery and just use the Foley as it has been working for me. As I've said before it is not a great but it is working and insurance is paying for the stuff so it's pretty easy. The interstim I looked into, and did a lot of reading on the Internet, but this didn't seem like a great solution for me either as I was told by the doctor I could not work during that time period that it is being placed so for the two week trial I would have to be out of work and then if it works and they install the permanent one I may have to be out of work for another 3 to 6 weeks as I am a firefighter and cannot work right after that surgery. So it has the potential to put me out of work for two months, I can't really do that as it would really be more of a nightmare than anything else for a treatment that may or may not work. I don't want to put myself through that. So, Foley catheters and diapers it is for me at least for the foreseeable future. As of right now I'm pretty fed up with doctors and don't want to put myself through any more appointments or tests. I've had enough. Maybe someday I'll actually go see somebody that specializes in IC and actually get a diagnosis, but for now.....I'm managing day to day like the rest of you......wearing diapers and having catheters stuck in me by my wife. Today is my 34th birthday, I'm spending it with my family.

Happy Birthday, PB&J - have a great one. I sent you a pm earlier. I couldn't remember if today is your actual birthday. I remembered that there was a mix-up with the data entry last year, but you planned to go into the database and fix it.

I'm sorry that the doctors are not responding adequately to your need. I hope someone steps up in the near future. Meanwhile, have a wonderful day with your family.

Wetters

Thanks, Wetters, today is the day........I'm spending it with the wife and kids!!! At some point maybe I'll go back to a doctor, but they just don't listen and they're always trying to push pills, surgery, and other odd treatments on people, many of them are more problems than theyre worth.......

@PB&J32 - Happy Belated Birthday and sorry to hear that the doctors have not been able to provide you with a more concrete diagnosis!

Hope you had a great day even in spite of this.

DD1983

Happy Belated Birthday Hope it was a great day. Like you I don't want any more meds or tests. I know it is not the case for me since I get my supplies from the VA, but I wonder how much the doctors get prescribing meds for these issues. It seems wearing diapers and catheters are cheaper than meds.