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Could this be interstitial cystitis but with out the debilitating pain??? I came across a condition called "urgency-frequency syndrome" on the NAFC website. As I got digging into it, I saw that it was interstitial cystitis and that I had once dismissed this conditon because it was commonly called painful bladder syndrome. I really don't have any pain down there so it was pretty easy to rule out icy as a suspected problem because I don't have a painful bladder. All the things that I'm reading now say that that is not occur criteria for exclusion of the condition. As aim reading now, it's frequency, urgency and/or pain. I have the frequency and the urgency I just don't have the pain. I also have the sexual side effects and the anxiety that goes along with this. Some people that have icy I've been repeatedly misdiagnosed and have been told that it is psychosomatic or that it is all in their heads. I've been told this at least twice. I've been living with this for at least 3 months ( 16 months to be exact) other than the symptoms getting more severe and I have been with living with this pretty much unabated since it began. Of course 90% of patients diagnosed with this are female......but males CAN have it!!! I had my second cystoscopy about a year ago, there were no Hunner's ulcers present and I was given a clean report after it was all done, (90% of IC patients under the age of 60 don't have Hunner's ulcers) same with the urodynamics test. It all showed me being completely normal. Which CAN happen with IC patients. As for the pain. Some literature suggests that the pain is subjective and can be as bad as debilitating pain that goes away to uncomfortability when the bladder fills. I feel very uncomfortable when my bladder is full hence why I use the Foley catheter..........anyway, I have enough information to write a book but I'll spare you the rest for now......

I don't have pain, either. Just frequency/urgency, but the Wetapalooza comes and goes, and I don't have it often. Since I'm over 60, I think I'll ask about Hunner's ulcers when I see the urologist. Thanks for the research/info, PB&J. I hope you get answers/relief soon.

Wetters

PB&J,

That is what i have and I can testify that it happens a lot where people will have two of the hallmark symptoms but not the third. I started out with no pain but it escalated to a painful state befor i got things under control. Now this does not mean you will develop the pain symptoms.

How I was finally diagnosed was with a hydrodistention. What that is, is where they fill the bladder past what is normal to stretch it and show any small damage to the bladder wall. I was sedated for my procedure if that gives you an idea how uncomfortable it is.
If they do the test and find the bleeding and the wounds, get on Elmiron ASAP. It will take a few months to start seeing a differance but for a lot its a game changer.

Rope, are you taking elmiron??? I meant to talk to you privately before I posted this. I'm still trying to convince my urologist to entertain my notion here. The other day on the phone he was reluctant to even entertain me. I dropped off a bunch of stuff in his office for him to read......I hope he reads it and gets back to me....I'm stressed out about it........

It said that 90% of patients under 60 have no Hunner's lesions.......so it's very possible not to have them.....I don't know if he's willing to do the hydrodistention. He sounded reluctant to do anything at all and told me to keep doing what I'm doing with catheters and diapers.....