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Seen a doctor but not looking so good.

Wed Sep 21, 2011 3:16 pm

I noticed my 1st thread was hijacked by spam. Oh well I. I don't think this would have fitted in there.

I mentioned that over the last few months I've started having urges to pee as well as problems caused by chron's I have seen doctors though sense my 1st posts and joining here and I think I have a few answers.

The 1st on the bowel side is that I know for sure now that I have damage to my rectum due to the illness. Sense it was suspected though I'm disappointed but not really surprised. While I'm not due to see an urologist yet, I do have to have a physical exam for the bladder side soon.

When it comes to what I've been told on why I seem to keep on wetting myself, it's a little worrying what I've been told because it could be related to having dyspraxia. Due to it I don't have the same self awareness and coordination that normal people do, that could be playing a part and maybe, no longer able to control that part of my body like I should. My awareness before going and also trying to go on command has reduced quite a bit.

So with that I feel I feel like I'm getting somewhere, but if I'm having heavier urge incontinence now, I feel like that I'm pretty much going to be diaper dependent from now on. Both what my body is like and the mental side of things as well, I just can't manage without anymore it feels like. I guess because of it and also that family that I live with no nothing about what's going on, I don't really know what to do or how I should go about this.

Maybe there is hope, but I can't help but feel it's not looking good now.

Wed Sep 21, 2011 5:57 pm

Hi Glen

I have never heard of dyspraxia, but I looked it up on the web. I am curious as to whether you can become dypraxic with age. I have many of the adult symptoms, but I wasn't born with them, I've "acquired" them over time. I didn't see anything about incontinence in the list of symptoms, but they may be limiting the scary parts for the forum. Unfortunately, you have to donate to the Dyspraxia Foundation in order to access the forum to ask questions. Can you relate any further info to us on this.

Dan

Wed Sep 21, 2011 6:14 pm

I'm sorry but I don't quite understand what you mean by acquired because it goes agenst everything I learned about what it is and like to live with.

You are right in that incontinence isn't listed on their site, but I know of a lot of others with it that have had issues with it or small bladder. Things like that. Even if you don't notice though, keeping control there still requires a lot of coordination, something that some can find very hard.

For pretty much everyone I know with it and what's written online, it's ssomething your bone with and effects a persons development. I know for sure that for me and others that it has affected how hard toilet training is and also how long they have trouble into childhood and growing up. Also I know of no way one can "aquire" it later in life.

Saying that though. There are some things that you may take for granted as normal and only later realise that it's not normal. My example of lighter wetting would be one of them but I'm sure there are other things as well.

It may be worth looking into more yourself, but it's too complex a thing for me to give a full answer to.

Wed Sep 21, 2011 7:39 pm

Thanks Glenn for the explanation. I'm only going by the list of symptoms. Growing up, I think I had most of the normal capabilities most kids have, maybe not able to use them all well, but I never considered myself impaired in any way. But over the last ten years or so, I've noticed that my balance is gone, my coordination is gone, I fall alot, and other symptoms that nobody has given me any reason for them happening. I tend to bound off walls in the hallway because I can't walk a straight line any more. I worry that I'll bump into people at the mall. There isn't any visual or inner ear problems, it is a walking thing and I can't control myself at times. It is very weird. The list of symptoms for dyspraxia really rang true, but only for the last ten years or so. That is why I was saying that I've acquired these things, I didn't start out that way. Maybe there is something else that is causing this. I've brought this up with all my Drs. and nobody seems to have any clues. Maybe it is because I can't describe it well. I'm just looking for answers, not problems.

Sun Sep 25, 2011 10:33 pm

i have dyspraxia too. Am aware of a fair few people with inco problems due to lack of body awareness but they've always had those problems. If the problems have just appeared from nowhere it's unlikely to be dyspraxia.

You can acquire dyspraxia from brain injury but it's different to the developmental sort.
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