www.incontinentsupport.org

Hi all

I am concerned regarding my Urologist who is a professor at my local hospital hence no one is higher than him.

2nd appointment (which was a teleconference with my support worker and carer at the time) He first stated there wasn't any solution then he wanted me to self Indwell Catherise (he stated this on the phone with my support worker or get support worker to do it) without any training or knowing exact size.

3rd Appointment (Dec) He stated he doesn't want me to be Indwelled catherised due to uti risks and have Botox to the Urethal Spinctor and prostate (but wrote to GP COPY AND PASTED "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction".) I signed relevant paperwork that day and was told have the procedure in February.

4th Appointment (28th Feb)Urologist never showed up nor communicated this with his staff as he was flying to London (I am in Sydney, Australia) and was not notified this until 30mins after the appointment and had to wait an additional hour for a different urologist who made me sign the same paperwork as didn't know if it was sent to Admissions back in December (thankfully as after the appointment

I went to hospital admissions and found out my urologist never submitted the paperwork in December and refused to allow me to make a written complaint due to all the issues with the urologist.

I forgot to mention he flat out refuses to communicate with my Continence Nurse (who is private and the urologist is public public system refused my a public Continence nurse) my continence Nurse is a Doctorate with a PHD and I requested him to do this numerous times.

My question is

Is Botox to the Urethal Spinctor and prostate and "Botox injections to the pelvic floor and bladder neck given that he does have longstanding voiding dysfunction the same? If so what are peoples experiences as I have a letter from admissions that I should have the procedure in about 3 months?

And would people trust this behavior from their specialists? Many thanks

I regret reading of your difficulties with your urologist, and hope they can be resolved soon. My experience with Botox injections is that they worked pretty much as advertised; my bladder spasms were reduced and the external sphincter remained flaccid. My problem was that after each successive injection, the Botox wore off, at shorter and shorter times. When the third injection lasted less that three weeks, my urologist decided that a spincterotomy was needed to protect my kidneys from reflux damage. Report back as you can to keep us updated.