www.incontinentsupport.org

Hi!

I know I'm not on this site much anymore, but life keeps me busy. I have never given up on my ambition to form a non profit geared toward providing quality diapers and such to those in need, but starting a 501(c)3 is complicated and expensive, and not having the ability (or so I thought) to fundraise for the founding cost without compromising my SSDI and or Medicaid was a major deterrent toward sustained efforts. But I have taken a step in the right direction. I have started a Growfund and a Growfund giving circle. A Growfund account is basically an individual investment account but instead of the money being for me and myself, it is strictly to go to charitable organizations that I designate. A giving circle is a group of individuals interested in a particular cause that decide what types of organizations to give to that align with that cause and agree to contribute a set amount of money per month or so, and then at the end of a given period, make a large gift to one or more organizations. If anyone is interested in joining my giving circle, or finding out more, please contact me privately on this board. The giving circle I have started is focused on supporting existing organizations that provide consumable supplies, equipment and services to those facing disability and chronic illness and also supports diaper banks, particularly diaper banks that provide adult/youth sized supplies over baby diapers.

This is kinda off topic, and hard to admit, but I have a problem with binge drinking liquor. One of my triggers sometimes is rashes related to the incontinence. On Sunday, I ended up using on purpose my diaper rather than holding it uncomfortably waiting for my break. Usually I don't use the diaper on purpose; usually, the urine leaks on its own accord, when my bladder has reached its limit without telling me and just lets go. I usually don't use the bathroom unless I have to go number 2 because I usually don't get an recognizable sensation of a full bladder where I am able to wait until someone covers me to use the bathroom. Most of the time, I have no idea how full my bladder is getting, which is why I opt for max proteciton. But anyway, on Sunday, I wet the diaper to avoid having to ask someone to cover my post while I go use the bathroom, and I think no big deal, I'll just change on my lunch. I did, and after my lunch, I noted some discomfort in my testicle. I ended up using this as an exusue to buy Irish cream after work. Instead of painkillers or rash cream, I turn to alcohol sometimes. Yes, this is a problem, and yes I have made a call to get counseling/help for this issue. Does anyone else find their incontinence and related rash to be a trigger for binging on alcohol or food?


Peace out!

Rob

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"We cannot do great things. We can only do small things with great love" Mother Teresa

"THERE ARE FOUR LIGHTS!" - Captain Picard from Chain of Command, Part II

As long as your consumption is few and far between, I think you will be OK. In my case, the alcohol consumption, over time, became too much to handle and I could not stop. Realizing that I'm an alcoholic, I'm now a tea-totaler and involved in AA. I could blame it on my IC, but it is not that simple or easy. I do find that my outlook on life is far more optimistic now, FWIW.

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- Tom

Sounds like you feel guilty about something. Do you feel guilty for “intentionally wetting your diaper” because you brought that up twice. Seems like there is more to it.

No I don't feel guilty about intentionally using a diaper for its intended purpose. I used to. But not anymore. It is something I avoid doing if possible because I don't want to lose the remaining control I have and waste diapers unnecessarily. Sometimes though, It is hours before I can use the bathroom and I have to go, so I go. I usually don't bother using the bathroom while I am working unless I have to poop. Normally, my bladder empties itself without giving me an indicaiton. There are times where I sense a full bladder and decide to deliberatly let go. Do I feel guilty? No, thats what its for. Is it often that I do that? No, especially if im only wearing Medicaid provided diapers. Hope that clarifies things.

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"We cannot do great things. We can only do small things with great love" Mother Teresa

"THERE ARE FOUR LIGHTS!" - Captain Picard from Chain of Command, Part II