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Its like won't pee for over 7 hours or I'll wet myself 3 times in 5 minutes. Is this what a neurogenic bladder is? My urologist said she thought this was going on with me along with an overactive bladder. I've never thought about not going for several hours. I was just like bonus! When she did an ultrasound after a urine sample I still had a lot left in me. Thanks

Also is there a good chance I'll regain control again?

My symptoms are very similar to yours - I could go for hours at a time and not even really know I had to go, or I could just as often urinate several times in a short period. Generally, it was common for me to void anywhere from 12 - 18 times a day. Ultimately, I was diagnosed with neurogenic bladder and they threw in OAB and urge incontinence for good measure! Testing showed I was retaining 400-500 cc after voiding also.

At the time, I had control most of the time but had "accidents" and also wet the bed nightly. I had TUIP surgery to open the internal sphincter valve in the hope that it would allow my bladder to drain more completely. While the incontinence was a concern, the bigger issue was the increased risk of UTI and bladder infection due to significant retention, so I had the surgery in Nov. 2017. Immediately following the surgery, I essentially lost all control (well, I could hold it for maybe 10 - 15 seconds). At this point, I can have anything from a sudden urge followed by a flood, to no feeling/warning, etc. I can't usually tell when my bladder is full.

Over the past month, I have been trying timed voiding, which is showing some promise. I resisted trying it because I haven't read much about positive results, but my wife convinced me to give it a shot. Basically, I have been trying to make myself go about every hour or so. It doesn't always work, but I have been able to go without a diaper for a while around the house, since I am close to a bathroom. It hasn't done anything to change my nighttime issues, and I'm not sure I will ever be at a point where I don't need protection, but depending on how it goes, I hope to one day be able to go without a diaper if there is a restroom handy. It may be unrealistic, but it gives me a little hope!

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"When you die, on your deathbed, you will receive total consciousness. So I got that goin' for me, which is nice."

Same here Ej,one morning I just went to the bathroom and started brushing my teeth. Well you can guess what happen. Most of the time it just changing positions and my bladder decides to let loose.

This is why I love this board. I suffer from "I'm the only person in the world like this" syndrome and you all remind me that I'm not such a unique flower.

While I may never be cured you guys have helped me be confident in dealing with all this stuff. I never thought that I'd be 40 and incontinent, disabled and actually be the happiest I've been in a long time. I've found my routine. Found what works and just moved on. Do I have my days? Sure. I still get frustrated. I'm not looking forward to another catheter test next week at ALL. Hopefully I'll get some answers. But I'm pretty sure it will just confirm neurogenic bladder and overactive bladder. But what can ya do. Its certainly been a strange trip.

not even sure what to call mine seems like i can never hold anything both 1 and 2 they both for lack of better wording and terms i am just like a baby and they just ease out all the time any time