www.incontinentsupport.org

I haven't seen much word on this forum about your personal uroligist. I would assume everyone who's incontinent and wearing a diaper for control has been to a uroligist for help.
I personally have had the same uroligist ever since I became incontinent. He's been scratching his head for 8 years trying to help me. He's been supportive and caring all these years. He has never pushed me to surgery or any thing else invasive. I've always been open to him, and he apprecciates my coments on my management of incontinece. He said very few patients will talk much about it. My comments on what I use and how often I change helps him tremendously. I'm not embarresed at all wearing a diaper. Espeacially in front of him. I see him every year and have an ultrasound done every two years to see that my bladder is OK. I have good insurance so about 90% is paid. If my doctor hears of any new developements on managing incontience, he tells me. He knows that I'm at peace as I am and he accepts it.
My wife has too. I kept some old underwear just in case I was ever cured or regained some control, but my wife threw them all out last week. She says she accepts my diaper as my underwear as long as I need one.
Do other members of this forum have a ggod relationship with their urologist or any nightmares? I'm just curious. ........Paul

I've had several urologists over the years but have never established as good a relationship with any of them as you have with yours.

Most of the difficulties that I've had with urologists have stemmed from a couple of problems. First, they are determined to cure me, come hell or high water even if it kills me. They see incontinence as a terrible thing and assume that I should be willing to try any drug or risk any surgery no matter how small the chance of success in the hope of finding a cure. The drug thing is particularly hard to deal with. They don't understand how, despite really unplasant side effects, I could possibly refuse a drug that reduces the number of wetting episodes slightly.

Second, they don't understand my preference for diapers. In their opinion, a real man just doesn't wear a diaper. An external catheter is the thing a man should wear even if it causes more problems with skin in certain sensitive areas than a diaper does.

Your urologist is a real treasure. Stay with him.

Howdy all
Maybe I should stay away from this topic but my two cents worth on the subject says. If one doctor isn't working then find another one. I played the doctor game years ago. I found the cure was worse then the problem. After many $$$ and wasted time I finally just said the heck with it and decided being in diapers and not stressing out about the side effects of the meds tests etc. Not to mention the let down when another cure failed just isn't worth it. I may be in diapers and have a wet bottom on and off day in and day out. But at least I feel perfectly healthy otherwise.
Just my two cents.........Sandy

Sandy, I know what you mean in your uroligist trying to find a cure for your incontinece. I think some times they feel like it's their mission to get you cured at any cost.
My uroligist knows I'm content with the fact that I'll be in diapers the rest of my life. Maybe some day they may find something that will ether cure me or help me somewhat.
I just go on a regular basis to make sure my bladder is still healthy. Plus I can get some free samples of the wonder drug too.
Keep in touch!...................Paul

Sandy,

I am sorry this has been the end result for you. I have found success in treatment. I am happy to report diapers have become an item worn as a precaution in public, and no longer 24/7 necessity due to never knowing when i will have an accident! YES! Just to be sure, i will still wear proteciton in public, but things are looking good.

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"We cannot do great things. We can only do small things with great love" Mother Teresa

"THERE ARE FOUR LIGHTS!" - Captain Picard from Chain of Command, Part II

I am in agreement with Sandy.

I spent (what feels like) most of my teenage years in and out of doctors offices and hospitals and seeing specialists... being poked and prodded and scanned and tested. Tried some therapies, tried some pills, found that nothing worked reliably, safely, and with a minimum of side-effects.

At the ripe age of 18 I gave up on the wonderful American Medical system... and of ever being rid of my little problem. I stopped going to all the crazy docs and specialists. I still go see my regular physician once a year for a physical, and he always asks about my incontinence. I simply say that I am handling the problem and am happy with my quality of life... let's leave it at that.

So I wet myself... it's not a big deal. There are many worse things that could be wrong with me, I am otherwise healthy and "normal". I wear my diapers and deal with my condition as best as I am able. I lead an otherwise unremarkable life... I have a job and a fiancee... and overall I'm quite happy.

My views on our great medical system can be summed up with the following... "The American Medical System: We've got 6 ways to give a man a hard-on, we'll get back to you on that cure for cancer."

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~~PuddleGuy

In the years where my condition was progressing rapidly. I was informed by my doctors that my incontinence would progress to complete. I was given few options besides surgery or diapers. I have been back in diapers for quite awhile now. I doubt that will ever change at this point.

In the 6 1/2 years since I've developed incontinence, I've been to my primary physician, and to the urologist that he recomended. I really like both, and trust them both completely. My primary doc has been treating me for over 20 years now, ever since I got married and met him through my wife. He's very thorough, and cares deeply for all his patients. I don't think I could have a better doc than him.
He also recommended the urologist I go to. He's been very helpful as well, and has tried to find something that would control my bladder problems without resorting to surgery. I've tried catheters, and 3 different drugs, none of which did much good. I've been dealing with this with diapers since it started, and I've gotten used to them, so it's not that big of a deal for me anymore.
I would have been willing to try a few other things that my urologist wanted if it wasn't for the fact that I also have bowel incontinence. Nothing that I've tried has helped with that either, and I have just decided that since I have to use diapers for the bowel issue, I might as well go ahead and use them for the bladder problem too, what's the difference, right?
My urologist understands this too, and has been very supportive. He's been very interested in my case, keeping tabs on me regularly, through my appointments of course. I've gone to him for the occasional UTI, and once a year for a check up. Besides the incontinence, I've an issue with sexual function, and he's been very active in trying to solve that as well. Unfortunately, it's not done any good so far, but he still tries, I've got to give him that.

I just recently had my 5th back surgery this past September 22nd, and I had a horrible, horrible groin pain from it. Nothing would kill the pain, not even the morphine I take. My back surgeon kept telling me it was from pinched nerves, and that it would go away eventually. I was inclined to believe him because it's happened after the other 4 surgeries as well, but just not quite to the extent of pain I was having this time.
Well anyway, my wife wasn't satisfied with that, and she contacted my primary doc, and he prescribed an antibiotic for a UTI just in case, and in about 4 days, the pain was lessening. I went to the urologist afterwards for a more thorough exam, and he sent me for a CT of my groin. Because of the type of pain, and the severity of it, he suspected that it might be something else. Well it was a good thing that I went, because it turned out to be an infection in the epididimus, the tube that runs from the testicle to the urethra. I've had pains in that area ever since I had my vasectomy years ago, and where that doc had done the cutting, I developed some large scarring. evidently, making me more prone to infections there.
So to correct this problem once and for all, I'm going in this coming friday and he's going to cut out all of the scar tissue and clean up the tubes so that it doesn't happen again.
I believe that one of the triggers of these painful episodes is the back surgery. Not directly of course, but because they lay me out on a cold steel table, laying on my balls for hours, crushing them with my own weight. These scarred areas have always been very sensitive to the touch, and I know that laying on them for hours only makes it hurt worse. It just happened that this time I got a UTI from the catheter they used during the surgery on top of the crushing pain. I think that's why my back surgeon didn't think it was a UTI, just the normal crushing pains I get after each surgery.

I know this was somewhat long winded, but maybe the explaination will help someone else with a similar problem. Thanks for letting my speak out.

Rick

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Some people say I have drain bamage because I'm always getting my mords wixed up! But you know dislexics are teople poo!!
And one day when I stop hurting I'll feel better too!

I go to a Teaching University Urologist. I get a new one every 4 years. I go there because they do most all tests in house. All the Doctor's are supervised by Board Certified Urologists. I have to go for a Biopsy on the 28th of November. My Doctor will do the procedure with his Supervisor right beside him!. Something about two heads being better than one!