www.incontinentsupport.org

It sounds like you have explored a number of potential remedies. One question, do you feel that the doctors you are seeing are the best in their field? Are people from outside your region coming to them for treatment? If not, you may want to consider getting a second opinion from one of the leaders in the field.

My doc is a specialist at top university hospital. The last time I spoke to him, the surgical options seemed too high at the time. One of them even involved a catheter if it didn't go well because my bladder could have problems emptying. The risk of a catheter for the rest of my life scared me.
I will see what he says.
In the meantime, my symptoms are getting any better so that is something that I have to deal with too.

Hi Diane I fully understand your frustration,I use a intermittent catheter twice a day,due to bladder diverticuli.I still suffer with urg incontinence,and wear a heavy diaper when intown.Due to covid restrictions I too noticed that most washroom are closed,we all coping this together.

Seeing myself in a diaper is still very jarring. I'm youngish, my kids are youngish and hitting their tweens. I miss hitting the pool or a doing a yoga class with my friends. I think about what I wear all the time. It isn't how I want to be perceived. I have also come to terms with it and accept it for what it is. I choose clothing that makes me feel good. I check in here so I don't feel alone and I remind myself that I didn't discuss bathroom habits with my friends and acquaintances before I became incontinent so I certainly don't need to do it now.

I think you should explore all the options especially with a supportive spouse or a chance of improvement. But if diapers is the worst that can happen, please understand that you will be ok eventually with that as well.

I feel that, since my boys are 12 & 14.

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When you arise in the morning, think of what a precious privilege it is to be alive - to breathe, to think, to enjoy, to love.

Marcus Aurelius

dianese i really think you should also try the northore line of stuff as a couple others have said as a user of their supreme diapers they are the best we have found for me aides tried the pull ups on me and they did a pretty darn good job but with my legs stiff like i am sitting is the only reason we dont use them

Just remember...

No matter what it looks like.. no matter how it goes on. It's just underwear. Long ago i resigned myself to wearing diapers for life. Its still embarassing to me sometimes but it is what it is. All treatments I have tried have been unsuccessful/not practical.

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"We cannot do great things. We can only do small things with great love" Mother Teresa

"THERE ARE FOUR LIGHTS!" - Captain Picard from Chain of Command, Part II

Remember, its just underwear.

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"We cannot do great things. We can only do small things with great love" Mother Teresa

"THERE ARE FOUR LIGHTS!" - Captain Picard from Chain of Command, Part II