www.incontinentsupport.org

Support for dealing with incontinence
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PostPosted: Fri Jan 06, 2017 1:04 pm 
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Joined: Sat Mar 29, 2014 11:45 am
Posts: 1894
This makes some sense. Folks whose incontinence was cured have no further need for sites such as this. However, for too many of us, incontinence remains a daily issue that we must manage. And this site offers effective assistance for that.


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PostPosted: Fri Jan 06, 2017 1:07 pm 
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Joined: Thu Jan 05, 2017 10:38 am
Posts: 64
Location: UK
Patrick wrote:
This makes some sense. Folks whose incontinence was cured have no further need for sites such as this. However, for too many of us, incontinence remains a daily issue that we must manage. And this site offers effective assistance for that.


Thanks. It wasn't just on here that I saw that people end up living with it. Knowing this site is here for support is great.


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PostPosted: Fri Jan 06, 2017 2:11 pm 
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Joined: Sun Oct 20, 2013 3:45 pm
Posts: 1959
Location: North Carolina - Raleigh area
Yep, due to problems with my spine and trauma to the pelvic nerves I figure that I am one of those who will be on this site for quite some time. I have no real expectation of a "cure" for my (double) incontinence. It is due in great part to the support I received from this group that I am able to manage it relatively well. :D

--John


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PostPosted: Fri Jan 06, 2017 3:21 pm 
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Joined: Thu May 15, 2014 4:59 pm
Posts: 216
Hi Drew, add my welcomes to the list :) the support here is second to none and the advice is always helpful.

I hope you are able to log everything before your doctor's as has been noted. If it is OAB and not an infection or something like that, you will probably be given a choice for pharmacological help.

Have you tried some of the behavioral exercises? Double voiding, timed voiding, kegals, etc?


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PostPosted: Sat Jan 07, 2017 12:04 am 
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Joined: Sat Jul 02, 2016 11:34 pm
Posts: 149
Location: Jacksonville, FL
Drew

The cost of premium diapers can be expensive. One possible solution is to wear washable diapers. The up front cost is high, however over the long run you will save money. If you can sew then try making the diapers. I have made 10 pocket type diapers and will make several more over time. The pattern I used was free from the internet.

Yes they will have to be washed and dried. To save some energy I do not use a dryer but use a “solar dryer” (two posts with a rope outside).

If you can not sew then you could buy ready made diapers. Just an idea to think about.

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RetiredRN


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PostPosted: Sat Jan 07, 2017 4:47 am 
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Joined: Thu Jan 05, 2017 10:38 am
Posts: 64
Location: UK
Oh joy, so yesterday I was at work, I had the urge, felt myself getting wet and thought I'll change once I've finished this bit of work. When I got up from the chair about 20mins later, I felt wet trousers. Yep, the nappy had leaked.. :(
I'm guessing this is something to get used to?

RetiredRN wrote:
The cost of premium diapers can be expensive. One possible solution is to wear washable diapers. The up front cost is high, however over the long run you will save money. If you can sew then try making the diapers. I have made 10 pocket type diapers and will make several more over time. The pattern I used was free from the internet.

Yes they will have to be washed and dried. To save some energy I do not use a dryer but use a “solar dryer” (two posts with a rope outside).

If you can not sew then you could buy ready made diapers. Just an idea to think about.


Thanks, I wasn't aware you can get washable nappies. Hopefully I won't need them and this will be a short term thing, however, if it turns out to be a longer term thing, then I'll look into it.
Any good links for the pattern to make your own or any recommendations on where to buy pre-made?


Tarlton wrote:
Hi Drew, add my welcomes to the list :) the support here is second to none and the advice is always helpful.

I hope you are able to log everything before your doctor's as has been noted. If it is OAB and not an infection or something like that, you will probably be given a choice for pharmacological help.

Have you tried some of the behavioral exercises? Double voiding, timed voiding, kegals, etc?


I've not started keeping a voiding diary yet. I must start soon so I've something to show the Doc. Is there a standard format it should be in?
What are the exercises you refer to? I've not seen anything listed buy maybe I've missed it?


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PostPosted: Sat Jan 07, 2017 8:27 am 
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Voiding Diary http://www.nafc.org/diaries/
Training http://www.nafc.org/bladder-retraining/

Granted, this is just a start and helps you get an idea of where you are at with the bladder. If you use a smartphone look up "bladder diary" and there are some apps that make logging easier

The exercises in the second link are the basic first line of defense to deal with this, but sometimes it doesn't work (case in point, most of us here), nevertheless they are worth trying to see if they can reduce your symptoms and possibly cure it.

As to the leak, yeah, if happens. Use what you know of the situation to try to learn from it. Maybe the diaper wasn't on right, but even so, and it is rare, but any diaper can leak even when done right. For this reason many wear plastic pants or have backup leak protection such as underwear, etc. this is another reason many will wear dark pants as it hides leaks.


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PostPosted: Sat Jan 07, 2017 8:52 am 
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Joined: Thu Jan 05, 2017 10:38 am
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Location: UK
Tarlton wrote:
Voiding Diary http://www.nafc.org/diaries/
Training http://www.nafc.org/bladder-retraining/

Granted, this is just a start and helps you get an idea of where you are at with the bladder. If you use a smartphone look up "bladder diary" and there are some apps that make logging easier

The exercises in the second link are the basic first line of defense to deal with this, but sometimes it doesn't work (case in point, most of us here), nevertheless they are worth trying to see if they can reduce your symptoms and possibly cure it.

As to the leak, yeah, if happens. Use what you know of the situation to try to learn from it. Maybe the diaper wasn't on right, but even so, and it is rare, but any diaper can leak even when done right. For this reason many wear plastic pants or have backup leak protection such as underwear, etc. this is another reason many will wear dark pants as it hides leaks.


Thanks for the links. I'll have a look at them soon.
Thankfully I was working on my own and wearing dark trousers. Hopefully that doesn't happen again.


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PostPosted: Sat Jan 07, 2017 12:21 pm 
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Joined: Mon Feb 14, 2011 9:57 am
Posts: 189
Location: UK
Are you based in the UK? Often the first step here is to see a continence nurse. They can prescribe meds, kegals, check for residual urine, aska lot of questions and perceive pads, nappies etc. I didn't see a urologist until a bit later. Urologists don't tend to deal with the pads prescription and leave that to the nurses. I actually self referred to the continence service.


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PostPosted: Sat Jan 07, 2017 12:29 pm 
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Joined: Thu Jan 05, 2017 10:38 am
Posts: 64
Location: UK
tangerine wrote:
Are you based in the UK? Often the first step here is to see a continence nurse. They can prescribe meds, kegals, check for residual urine, aska lot of questions and perceive pads, nappies etc. I didn't see a urologist until a bit later. Urologists don't tend to deal with the pads prescription and leave that to the nurses. I actually self referred to the continence service.


Hi Tangerine, yes I am in the UK (just figured out how to show that on my profile).

I didn't know you could self refer to the continence service. I'll have to look into that. Any ideas how I find out my nearest one or is it just a google search?


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