www.incontinentsupport.org

Support for dealing with incontinence
It is currently Sun May 11, 2025 7:50 pm

All times are UTC - 5 hours [ DST ]




Post new topic Reply to topic  [ 5 posts ] 
Author Message
 Post subject: Intrastim therapy
PostPosted: Wed Dec 05, 2012 1:00 am 
Offline

Joined: Sun Jul 01, 2012 9:21 pm
Posts: 17
Has anyone tried interstim therapy for urinary incontinence?


Top
 Profile  
 
 Post subject: Re: Intrastim therapy
PostPosted: Wed Dec 05, 2012 8:17 am 
Offline
User avatar

Joined: Wed Jan 06, 2010 4:59 am
Posts: 411
Location: Scotland
I've seen posts by people who were going to try this. Usually there is no one on the forum who has and the person is asked to report back and say how things went but somehow never do.

So, flagrl1225, if you go for a trial could you come back and let us know how you got on, please? it would really help the next person who comes along wanting the same info.

Oh, and why are you thinking of interstim? I know it seems to offer the possibility of button press continence but I'm sure there are downsides too.


Top
 Profile  
 
 Post subject: Re: Intrastim therapy
PostPosted: Wed Dec 05, 2012 4:24 pm 
Offline
Admin
User avatar

Joined: Sun Nov 14, 2010 1:05 am
Posts: 750
Location: "Wet Coast" B.C., Canada
I did a quick look around and search, a dozen or so posts about it, but all were chatter about trying but no one who actually went through with it and reported about the experience or success/fail report. Let us know either way! Puffy

_________________
Puffy
BC, Canada
Fighting the "Bladder Battle" since 1995


Top
 Profile  
 
 Post subject: Re: Intrastim therapy
PostPosted: Mon Dec 10, 2012 2:44 am 
Offline

Joined: Sun Jul 01, 2012 9:21 pm
Posts: 17
I'm going on Thursday to see if I'm eligible. If I go through with the trial I will for sure post back. This is the first option that has been presented to me to make things better, but I'm trying not to get my hopes up. It doesn't seem like it is a cure all solution. One major downside to it is you can't have any MRIs with it in. It has to be taken out. I've had a lot of MRIs lately and don't know if the neurologist is going to be ok with me getting it. I meet with both the urologist and the neurologist over the next two weeks, I'll let you guys know.


Top
 Profile  
 
 Post subject: Re: Intrastim therapy
PostPosted: Mon Dec 17, 2012 12:39 am 
Offline
Admin

Joined: Wed Feb 10, 2010 2:03 pm
Posts: 780
Location: U.S.
Flagirl,
Be careful and stay well informed on the interstim. I talked to several practitioners and people who had the device. You cannot have any MRI's and also the leads go into the sacral nerve in the tailbone. These leads can slip leading to the need for repeat surgeries. The people I met had been under the knife several times to get theirs repaired. This is not something I'm willing to do. I'm also bowel incon so whats the point if I still have to wear a diaper. And the device is not guaranteed nor are the results. The people I talked to had theirs removed after a failure period and the repeat surgeries I mentioned. It just wasn't worth it to me. Or them. Good luck! I wish you the best.

Don


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 5 posts ] 

All times are UTC - 5 hours [ DST ]


Who is online

Users browsing this forum: No registered users and 364 guests


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
cron
Powered by phpBB® Forum Software © phpBB Group