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Support for dealing with incontinence
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PostPosted: Mon Jul 29, 2013 12:12 am 
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Joined: Sat Jul 27, 2013 4:06 pm
Posts: 8
I am 42 and a year ago I started having issues with urinary incontinence and had X-rays done and they found that I had broken my L4 and due to the pain I was having in my lower back and with sciatica the Dr feels that I have Cauda Equina. My urinary incontinence has gotten pretty bad and I have no control when I sleep and several leaks during the day. I was given oxybutynin and it helps but doesn't cure anything.
I go on the sixth to see a specialist and I am hopeful that there is something that can be done but I am very aware that I missed the magic 48 hour window with cauda equina.


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PostPosted: Tue Jul 30, 2013 9:29 am 
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Joined: Mon Sep 08, 2008 1:47 pm
Posts: 578
Simply stated, Cauda Equina simply means damage to certain nerves and anytime you damage these nevers you become incon of bladder, or bowel, or both. There is no magic cure. All the doc's can do is treat the damage that has been done and hope for the best.

I have this same issue and I am bladder, and bowel incon 24/7, with severe bouts of pain. Botox injuctions can help with muscle pain so if your having a lot of pain issues you might want to ask the doc your going to see on August 6th, about Botox injection in the soft tissues. It helps.


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PostPosted: Sun Aug 04, 2013 10:29 pm 
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Joined: Sat Jul 27, 2013 4:06 pm
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Thanks johnstone I sure will ask about the botox. I think I cope withthe pain pretty well but the incon is another issue. I am extremely thankful that it's only bladder!


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PostPosted: Mon Aug 05, 2013 7:54 am 
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Joined: Thu Aug 01, 2013 8:58 am
Posts: 3
Location: South Africa
I feel for you.

I have various fusions C5-C6, L2-S1 and a narrowing between T11-T12, all trauma related. While I have not been formally diagnosed with CE, I do seem to have some of the symptoms:
* post-void residual incontinence;
* decreased anal tone;
* saddle anesthesia;
* bilateral and/or unilateral sciatic leg pain.

I feel as though I have been punched in my coccyx, the surrounding muscles feel tender. Pinching to shut off urinary flow or close the anus hurts.

I am mostly dry by day, seldom by night and although I have control I seem to leak constantly after voiding. My bladder neck has been reconstructed, and I do not have any prostrate problems, but my uretheral valve could have been damaged by inconsiderate implatation of a catheter while undergoing surgery (twice). Feacal accidents are seldom unless I have a runny tummy, I do need to urgently get to facilities.

I find the problem with infrequent wetting is that you never know when you will need protection so I always wear some, and if you are wearing it, your resolve to prevent an accident at all costs is diminished, so I often end up wet anyway.

I am not entirely sure whether I have CES, but there is enough smoke here to call it a fire.


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PostPosted: Fri Aug 29, 2014 7:12 pm 
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Joined: Mon Sep 08, 2008 1:47 pm
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I know there are others here that have had some type of back injury causing nerve damage in the spine. For over a year, I have been getting Botox injections in my back to relieve me of muscle pain associated with spasms. If you currently receive trigger point injections and they work for you, you should your doc about receiving Botox injection in lieu of the trigger point injections. Botox is more effective, and it last longer in duration compared to trigger point injections.

I am an "incomplete" paraplegic (I'm mobile, with severe spinal nerve damage), and have Caude Equina Syndrome (CES) simply stated, nerve damage to the spine, and it the cause of bladder, and bowel incontinence. Because I have such severe nerve damage it causes the muscles on both side of my back to spasms uncontrollably causing severe pain at times. Like many with nerve damage to the spine, I too take all the nerve meds but on of the BEST meds I receive is the Botox injections in my back every 10 - 12 weeks. If you respond well to trigger point injections, and not everyone with a back injury does, Botox injections can be very beneficial and pick up where trigger point injections leave off so ask you doc about Botox injections.


Hope this helps.


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