www.incontinentsupport.org

My incontinence started many years ago when I was still living at home with my parents. An errant driver ploughed through our front yard, were I was playing, with his car pinning me in the wreckage. Since the age of six I have been fully incontinent due to the injuries I received. My dear late mother did the best she could for my care which meant cloth diaper and plastic pants. This is how I dealt with my incontinence for almost seven years. Or should I say my mother dealt with my incontinence, she took total charge of my diapers and changing. Finally the disposable products came out and I began caring for my own incontinence. I think this was a very sad time for Mom but it needed to happen, I was no more than a late teen diapered baby at the time. Mom has passed away bless her soul and I have managed my own incontinence with all of the modern products available. Currently in the new North Shore Briefs.

Welcome DJC. I hope you find what you are looking for here. We are a very supportive group here and we welcome new members. Good luck.

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"Why is the rum always gone?" - Captain Jack Sparrow

"There is no human problem which could not be solved if people would simply do as I advise." -
Gore Vidal

Welcome DJC. This is a great community and I hope you get a lot out of it. Sounds like you have many years of experience, so it'll be interesting to hear your perspective as well. Also, big fan of the Northshore Briefs as well

North Shore Brief is my latest addition. I have used Bambino Biancos for quite a few years now. The fit seems to be the biggest question for me for the most part, the diapers are all adequate in their absorbency. My weight changes drastically due to the injuries I live with from my accident. At my lightest I am a small person and with the medications I swell to a medium person. Oh well poop happens. I have done some reading on the sight and I think I have found a site I like thanks for the welcome.

DCJ,

Welcome to the group. I've read a few of your posts and I'm curious what the doc(s) have told you about the cause of your incon. Would you mine sharing that with that with the group?

I assume you are "mobile", and not in a wheelchair, but this alone does NOT rule out a number of possible nerve injuries that can cause you to become incon. I am double (bladder, & bowel) incon from such as injury, and I know there are many in this group that have the same type injury, or something similar. If in fact you the cause of your incon is some type of nerve damage then it is very easy for the doc's to ID the exact nerve(s) causing the problem and depending on the nerve, and many other factors it can be corrected with surgery. I'm certain you must have seen several doctors over the years, and you mentioned having a number of tests done in one of your post, I'm hopeful you will share more about your condition, and what long term prognosis you doc(s) have made if any.

With the exception of enuresis (bed wetting), incontinence will ALWAYS be secondary health issues to a more serious problem, and in some situations a side effect to medication(s). This too would be classified as a secondary health issues caused by some type underlying health issues. A good example of this are the meds used for patients with PTSD. One of the known side effect to certain medication(s) is incon.

Its nothing less than amazing to me how technically advanced we have come. With the use of a MRI, nerve study test, and with a few simple urology tests such as the urodynamic, and cystometry tests can tell the doc's almost anything they need to know about nerve impulse activity, or absence thereof, and along with bladder contractions, and volume.

For as many years that you've been incon, and with all the doc's you've seen over the years, I feel very certain these tests, and many others were preformed with the medical objective of identifying the cause of your incon and then providing you with option better your situation. If the cause of you incon is "nerve damage", you probably know, more times than not, this condition in inoperable, and the use of med(s) provides very little, to no help for incontinence.

Hope this helps. I look forward to your reply assuming you are comfortable sharing some of your medical issues.

Above all,.....welcome to group. I'm sure you will find answers to ANY topic, or subject related to incontinence,...the members of this group is what makes it so successful in helping other member with concerns, needs, or questions.

I look forward to your reply assuming you are comfortable sharing some of your medical issues with the group that pertains to your incontinence.

I suffered with a paraplegic condition for near 8 years until the surgeries were perfected to correct my problem. I was confined to a wheelchair for many years. I am now bipedal and do walk somewhat normally. As for the bladder and bowel control not much luck there, the nerves were too far damaged. Since that time I have had the misfortune of the challenges of prostate cancer. I have had the vast numbers of drugs involved with becoming cancer free at present. This is the cause of my size changes over the past few years. I am retired and not about to give up on life and all of my wonderful friends and families. I was very fortunate in the oil business and have a great retirement on the go.

Johnstone I am an open book only too happy to share with anyone. I hope with the little bit of information I can share I can give a little solace to another person. Incontinence can be a dreadful challenge for someone to deal with when it first presents itself. I hope we can all share and help these individuals with our experiences.

DJC/ Dean

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Dean & Kathy

Dean, sorry for the late welcome to the group. You do bring a lot of experience to the group. This group has been very good for me to ask questions and vent occasionally. not to mention to let me know I am not alone with this problem.

DJC,

Add my tardy welcome to our group. Clearly, you have had extensive experience with incontinence management, which makes you a valuable addition here. Perhaps, someday, all of the medical causes of incontinence will have been solved, but there will always remain accidents, traumas, and the folks who will be recovering from those events for the rest of their lives. Incontinence and the need to deal with it will always be with us.

Thank you all we have some catching up to do.

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Dean & Kathy